September is Spinal Cord Injury (SCI) Awareness Month, and the third week of September is National Rehabilitation Awareness Week. In recognition of these two observances coming together, we’re exploring research from the SCI Model System Centers. For decades, these centers have conducted research into the factors that influence outcomes for people in inpatient and outpatient rehabilitation, and developed interventions to improve their recovery and return to the community. Each of these centers contributes data to the National SCI Model Systems Database, the richest collection of information on SCI prevalence, causes, and lifetime effects. Now in its 53rd year, this data is used by scientists around the world to understand SCI and how it impacts health and function, quality of life, employment, and much more.
In addition to supporting individual rehabilitation, each center conducts a site-specific project, with objectives across the spectrum of life experience. Here are the current centers and their site-specific projects:
Baylor Scott and White Spinal Cord Injury Model System is testing the efficacy of brief prolonged exposure therapy (Brief PE) to prevent post-traumatic stress disorder (PTSD).
Michigan Spinal Cord Injury Model Systems (MI-SCIMS) is using Medicare and Medicaid claims information to develop and test an SCI Hospitalization Risk Index, which may help clinicians use information extracted from electronic health records to facilitate proactive decision-making and referrals.
Midwest Regional Spinal Cord Injury Model System (MRSCIS) is studying the use of smartphone technology, ecological momentary assessment monitoring, and e-coaching to help people with SCI meet exercise guidelines.
Minnesota Regional Spinal Cord Injury Model System is testing whether a new intervention reduces neuropathic pain below the spinal injury and improves related outcomes including mood, satisfaction with life, vocational activities, and community integration.
Mount Sinai Spinal Cord Injury Model Systems is testing the safety, feasibility, and efficacy of non-invasive spinal cord stimulation on stabilizing blood pressure for acute inpatients with SCI.
National Capital Spinal Cord Injury Model System (NC-SCIMS) is exploring self-managed intravesical instillation of Lactobacillus probiotic as a treatment for the most common urinary symptoms experienced by people with SCI who use intermittent catheters and prophylaxis to prevent urinary symptoms and their consequences.
Northern California Spinal Cord Injury Model System of Care is testing remote delivery of individualized medical nutrition therapy, support, and monitoring to individuals with chronic SCI to address risk of cardiometabolic disease in people with SCI.
Northern New Jersey Spinal Cord Injury System: 2021-2026 is testing an early intervention with Vocational Resource Facilitation versus referral only to state vocational rehabilitation agency services in helping newly injured people with SCI return to competitive integrated employment.
South Florida Spinal Cord Injury Model System is studying associations among body composition, chronic pain, and evoked pain sensitivity, and evaluating the role of obesity-related systemic inflammation in driving and maintaining these relationships in individuals with SCI
Southeastern Regional Spinal Cord Injury Model System (SR-SCIMS) is evaluating the effects of motor skill training plus non-invasive spinal stimulation with the goal of improved walking ability, balance, strength, and reduced spasticity.
Southern California Spinal Cord Injury Model System (SoCal-SCIMS) Program at Rancho Los Amigos National Rehabilitation Center is evaluating a program for community-based, non-pharmacologic pain management for those with chronic pain after SCI, including heart rate variability biofeedback training, a novel method of relaxation.
Spaulding New England Regional Spinal Cord Injury Center (SNERSCIC) is evaluating the trajectories of functional transition from rehabilitation to community via digital phenotyping, to gain insight into the factors that allow for successful transition to the community and chronic disease management.
Texas Model Spinal Cord Injury System (TMSCIS) is using a community-based participatory research approach to conduct a clinical trial of Living Longer and Stronger with SCI, a ground-breaking, multi-session health promotion group intervention designed to address the aging-related health needs of people with SCI.
The Northeast Ohio Regional Spinal Cord Injury System: NORSCIS is testing the feasibility of early administration of gabapentin to enhance neurologic recovery in people with SCI.
The Rocky Mountain Regional Spinal Injury System (RMRSIS) is investigating the efficacy of three approaches to improve upper extremity function and trunk stability in people with SCI, including functional electrical stimulation.
The University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS) is investigating the role of bacteria in the gut (microbiome) of persons with SCI longitudinally from acute injury across the first-year post-injury to determine if changes in the microbiome impact bowel dysfunction and other complications of SCI.
University of Pittsburgh Model Center on Spinal Cord Injury is testing the effectiveness of Increasing Access to Wheelchair Skills Training (SKILL), a remote training for both clinicians and wheelchair users that aims to improve the quality-of-care in both inpatient and outpatient settings by arming clinicians with the knowledge of how to teach wheelchair skills.
Virginia Consortium for Spinal Cord Injury Care is evaluating the efficacy of home-based, blood flow restriction-enhanced, neuromuscular, electrical stimulation with or without non-invasive spinal cord stimulation on upper extremity function in people with tetraplegia.
In addition, these projects collaborate on research to:
- assess changes in social networks after an SCI;
- develop and test a consumer-centered, educational intervention for the proactive management of composite and component cardiometabolic disease hazards in the first year after SCI;
- develop chronic urinary tract infection consensus guidelines, along with online training materials for both consumers and clinicians;
- evaluate spasticity and brain-derived neurotrophic factor as biomarkers of neurologic and functional recovery during inpatient rehabilitation;
- evaluate the oral health status among a sample of people with SCI in the US;
- examine benefits use after spinal cord injury;
- examine the relation of standard opioid administration, at the scene of injury and acute care, to motor functioning at rehab discharge and depression and pain outcomes at one-year post injury;
- identify factors that influence bowel-related quality of life and facilitate management across the first-year post-injury;
- identify risk factors for unintentional injuries in the first year after SCI to understand how these injuries occur, identify associated risk factors, and develop a tool to inform education/prevention programs;
- improve access to assistive technology; and
- study successful aging for individuals with SCI.
If you’d like to learn more about the SCI Model System and other NIDILRR-funded projects, visit the Program Database on our website. You can also contact our information specialists by phone, email, chat, or office visit for help in finding more SCI-related research and resources.