Answered Questions is a resource for the disability community that fills an information need. Each month, we look through the searches on our blog and through the information requests made by our patrons and pick a topic that fills the largest need. This month’s question is: “I am a dietician that works with people with disabilities and their families. What research, resources, and information are available that can help my clients with disabilities maintain or improve their diet?”
This edition of Answered Questions includes nutrition research, articles about nutrition interventions, tools, and information products for the disability community.
Nutrition Research:
These NIDILRR-funded Model System Centers are conducting research on how nutrition supports the health of people with traumatic brain injuries (TBI) and spinal cord injuries (SCI):
- Northern California SCI Model System of Care investigates the the effectiveness of an individualized medical tele-nutrition therapy program in addressing cardiometabolic disease in people with chronic SCI.
- Rusk Rehabilitation TBI Model System investigates the effectiveness of Mindfulness, Exercise, Nutrition to Optimize Recovery (MENTOR), a remotely delivered, patient-centered wellness program that focuses on mindfulness, exercise, nutrition, and wellness concepts, as well as peer/social support components to improve health-related quality of life life among people with TBI.
- University of Alabama at Birmingham SCI Model System (UAB-SCIMS) investigates the role of bacteria in the gut (microbiome) on bowel dysfunction and other complications among persons with SCI. The researchers examined microbiome changes longitudinally from acute injury across the first year after injury.
Research Articles on Interventions from NIDILRR-funded Studies:
Modification of the diabetes prevention program lifestyle intervention in persons with spinal cord injury (SCI): Efficacy for reducing major cardiometabolic risks, increased fitness, and improved health-related quality of life, assessed the impact of a therapeutic lifestyle intervention (TLI) based on the Diabetes Prevention Program and its maintenance phase in 20 people with SCI. The TLI consisted of circuit resistance training, a Mediterranean-style calorie-restricted diet, and tailored behavioral support. The findings support the effectiveness of TLI in reducing cardiometabolic risks, enhancing fitness, and improving health-related quality of life in people with chronic SCI.
Nutrition and exercise for wellness and recovery, A randomized controlled trial of a community-based health intervention examined the efficacy of the Nutrition and Exercise for Wellness and Recovery (NEW-R) intervention for improving competency and behaviors related to diet, physical activity, and weight management in people with psychiatric disabilities. The results showed that the intervention group had statistically significant improvements in perceived competence for exercise and healthy eating compared to a control group, but no significant differences in weight loss between the two groups. The findings suggest that NEW-R may be able to initiate the change to healthy lifestyle behaviors and boost perceived competence in a healthy lifestyle.
POWERSforID: Personalized online weight and exercise response system for individuals with intellectual disability: A randomized controlled trial examined the effects of Personalized Online Weight and Exercise Response System for Individuals with Intellectual Disability (POWERSforID), a tailored information and communication technology health intervention, on body weight and other metabolic risk factors in adults with ID. The study found that adults with ID who received the intervention were able to maintain or slightly reduce their weight and waist circumference, compared to the control group. The authors suggest that the findings of this pilot study serve as a basis for developing accessible weight management interventions for people with ID.
Research In Focus:
Peer to Peer: Training Peer Health Coaches to Lead a Health Messages Program for Their Peers with Intellectual and Developmental Disabilities summarizes a NIDILRR-funded study that tested a wellness program run by peer health coaches with intellectual and developmental disabilities (IDD) in collaboration with staff mentors from community-based organizations. Findings indicated that the program had led to several positive results for the program participants with IDD, including improvement in their hydration, physical activity knowledge, and total health behaviors.
Tools:
- The Life Skills Manual: Strategies for Maintaining Residential Stability is an evidence-based curriculum developed under various NIDILRR-funded grants to help adults with psychiatric disabilities learn practical life skills to live independently in the communities of their choice. The manual includes a module on food and nutrition management that features activities to learn strategies for preparing healthy meals and snacks, eating healthily on a budget, and identifying food resources in the community.
Information Products:
- The NIDILRR-funded Model Systems Knowledge Translation Center (MSKTC) publishes evidence-based factsheets on a variety of topics related to spinal cord injuries (SCI), traumatic brain injuries (TBI), and burn injuries. These factsheets include topics related to nutrition:
If you would like to learn more about NIDILRR-funded research on nutrition or other topics, please contact NARIC’s information specialists.