If you have ever sustained a moderate to severe traumatic brain injury (TBI) or experienced repetitive head impacts or exposures, you may be eligible to participate in a ground-breaking research study. The Brain Injury Research Center (BIRC) at Mount Sinai is leading the Late Effects of TBI Brain Donor Program, sponsored by the National Institutes of Health. BIRC is home to the only brain bank in the US dedicated to understanding how TBI affects health and functioning by collecting brain tissue at the end of life from individuals who survived a TBI.
Who is eligible to participate in this study?
- Anyone who has sustained a moderate – severe TBI OR repetitive head impacts or exposures.
- TBI is a disruption in the normal function of the brain that can be caused by a blow, bump, or jolt to the head.
- Head injuries are common following a vehicle accident, military service, sports concussion, fall, being hit by an object, etc.
- TBI is a disruption in the normal function of the brain that can be caused by a blow, bump, or jolt to the head.
- Participants must be at least 1 year post-injury.
- Participants must be aged > 18 years old.
- Participants or their proxy/authorized agent must be able to provide informed consent in English for study participation.
- Participants must be willing to consider brain donation at end of life.
What will participants be asked to do?
Those who are willing and able to travel will spend 4-5 hours at the BIRC at Mount Sinai Hospital in NY City. Some individuals may be able to participate by phone. An in-person study visit will include:
- Thinking tests (brief set of cognitive tests),
- Interview with surveys,
- Blood draw, and
- MRI scan.
Is there compensation?
To thank participants for time spent at the center, participants will receive:
- $50 for in-person visits or $25 for participation via telephone.
- Travel reimbursement.
- A copy of the completed MRI scan.
Where can I learn more about this study?
For more information, visit https://redcap.mountsinai.org/redcap/surveys/?s=AM9H3AF4PN or call 212/241-5152.
NARIC is providing this information as a courtesy to our readers and to the investigators leading this project. Neither NARIC nor NIDILRR are affiliated with this project.